Here we are a full four months after the operation. Is it time to reflect yet on what has happened?

We (my family) are constantly amazed how we humans adapt to whatever is thrown at us. Whenever you dare think things are really bad, you come across a woman without a nose.  But adapt we do, and reflection is part of that.

I grew up traveling and being displaced a lot. This did not appear to be a major issue until people starting pointing out small things, like culture shock and the down side of displacement. Other effects are less obvious. An incredible desire to protect yourself from everyone. Displacement creates a lot of anxiety. You keep having to prove yourself over and over again. At least, you think you do, and therefore attempt to do so. You become very insecure, whether you show it or not. In some cases, like when you are the only coloured person in an all white boarding school in the UK, other problems arise and existing issues are exacerbated.

I tell people that I was a really dumb boy. Stayed dumb for years. Oblivious to what was going on around me. Almost insensitive. I think, upon reflection, that I was not so much dumb, as removed from what was going on. The protection mechanism coming in full force. You react very slowly or not at all to events. Friends are hard to come by, not because people are not friendly, but because you are in some major ways, shut down. You fail to notice overtures. You behave in strange and unpredictable ways insofar as you are the stranger in the room unaware of some of the cultural differences that, in hindsight, were shining like beacons on a hill. I do not have examples, but I know they were there. One of the results was not being invited to parties, for instance.

Getting cancer has some of its own unsettling effects on your body and mind. To say the least. With one major difference. This time, the effects are somewhat mitigated by the fact that you have had a life, a marriage, new friends, work. The stranger in the room this time, is the cancer. A very unwelcome stranger that seems incapable of taking a hint. Definitely not invited to the party. Why does it keep hanging around?

Your past issues are held at bay for now. They seem so unimportant. You have to deal with the uninvited guest. So many of my friends have remarked on my being a lot more open, more receptive, calmer. This has not been a conscious decision, or something I worked on tirelessly for a few years under the watchful eye of a therapist. It just happened because you no longer have the energy to devote to being guarded, or defensive, or wary, or whatever your personality displayed at the time. You are way too busy wondering about the whys and wherefores of your current dilemma.

I am a lot more short tempered than I have ever been. I know I have mentioned this before. I thought it would be a phase. Not so lucky. I have no patience left. My tone shows it. Janet and I were shopping at Chapters (book store) the other day. This guy was paying for his books, but the stroller he had with him was blocking the way. I have no idea why people do this. He is standing at the cash, while the stroller is blocking the path behind him. I said: Excuse me do you mind moving your stroller. He gave me this look that translates to: what is your problem? I think even Janet was a bit surprised. I realised that my tone had been quite sharp. I was miffed that he had the temerity to block the passage. How minor an issue, and yet so large and prominent.

Next week is the start of two programs at Wellspring, Brain Fog, and Q-Chong. Looking forward to it.

Tomorrow is CT-Scan day. We will have the results hopefully by Monday when we see Dr. Kennedy, my surgeon. This will be the first time we will know for sure whether the chemo is working or not. I have no reason to assume it is not. I am in generally good health, positive, strong and mighty, as it were. The Neulasta helps when it decided to kick in. I do not have a cold, or any other infection. Small signs of the effects of chemo are there for those who are interested. Thinning hair, low platelets that result in nose bleeds. Nothing serious, just something to be aware of. Yet, I am a bit anxious. CT-Scans are pretty innocuous affairs. They cannot use the Porta-Cath and have to insert a needle to feed me the poison. That is the worst part, the needle. The rest of the scan is a quick and smooth event. That damn needle. There is apparently a new Porta-Cath coming to Canada that will allow them to use it for CT-Scans as well. I am hoping they will replace mine. The 90 minute operation is a no-brainer.

Who knew these bastards have such an effect on a person.

Today is Neulasta day. You can almost feel the energy draining from your body. Have I been compensating? Trying harder to make a go of things? Or do I really get this weak? It is truly a maddening set of circumstances.

My prescription was not ready. Waited an hour but no one appeared to be around. Sent eMails to all. Finally went home to rest, only to receive an eMail asking me where I am because the prescription is being prepared. Went back, waited a bit, got my shot. It is really hard for me to stay mad at my Doctors and Nurses. They are all so wonderful to me. Caring and all that wonderful stuff. One does wish things would go just a tad more smoothly at times. This sort of stuff is very exhausting. It takes a lot of concentration to move around at times.

It occurred to me this morning, that life appears to be a lot like buying a new television. You buy a new TV but the crappy programs remain the same. I wake up in the morning, and my crappy program has not changed either. Same old bag, same old chronic condition.

I had a bite to eat at Druxy’s which appears to be the only place to eat at the Princess Margaret Hospital. At the very least, it is conveniently located on the first floor by the doors, just in case you need to make a quick exit. All their tables are for four or more people, which is a bit strange, but who am I to quarrel. There I was enjoying some sort of pasta, looking forward to the bowl of fruit that was waiting next in line, when this lady comes up and asks me if two people could sit at my table.

I love the way we talk. How to answer? I suppose they could. Depends on their weight, disposition, and God knows what else. I smiled and said of course they could. She promptly sat her friend down in front of me while she went to get some food.

Her friend was the patient. She, in turns out, is the neighbour and long time friend. They live in Barry, which is an hours drive North of Toronto. They come in every day for radiation therapy. Lets get real. No one is here for entertainment. We all have some sort of cancer or another. This very charming woman has cancer of the nose and throat. Her nose has been removed. There is a big bandage in its place. Soon to be a new nose.

We had a very long conversation. Specially since I have this wonderful way of asking questions, as in: “So, what happened to you?”. So friendly and delicate of me. I hastened to explain that I too had a chronic condition. Interesting watching the two of us talk about our conditions. Both of us are still totally baffled by our circumstances, wondering what the future holds, and what we can do about things. How to stay positive, busy, active. The same stuff keeps making the rounds.

There I am with a bag, and she without a nose. Damn.

Her husband died three years ago of cancer. Her neighbours husband also died of cancer. I got their address, just in case you want to know what area of the city to avoid. We talked about death, which seems like another recurring theme amongst cancer patients. Nothing heavy or teary making, just a normal everyday conversation about the end of our personal times. Can you spell surreal? They asked me to look up their husbands if I get there first. They are the ones drinking beer, and fishing. Easy to spot.

The conversations amongst cancer patients all seem to revolve around the same topics. I am hardly surprised by this. We talk, come to terms with, and accept a situation, only to go through the same path when we meet someone new. Do you cry? Feel down once in a while? Put on a brave face? Wonder, and keep wondering? Tired? Exhausted? From the situation? From thinking too much? Are you reading? Can you concentrate?

In spite of everything, it was a great conversation. I have to end this with a a story I told the ladies. We were wondering why we find it so hard to sit at  table with a stranger, specially in a place like Druxy’s where there is an obvious shortage of tables.  I had a training contract with the Federal Government. We were located at the Sheppard Centre. The mall had a food court, as they all do. Their tables were huge and round accommodating about ten people. The chairs were those really silly mushroom stools.  You had no choice but to sit with strangers. One of the employees I used to have lunch with was excessively shy. He hated sitting with strangers. Lunch must have been a very tense experience for him. It turns out it was, specially when he went with me, since I will sit and talk with anyone.

There we are finding a place to sit when I locate two seats beside these cute young girls.  No fool I, we sit beside them and I strike up a conversation. So , how are you. The first girl tells me that she is having a terrible time with her period. Cannot believe how hard it has been. You could hear my friend hitting the floor in a dead faint. He didn’t, thank God, but he did mention to this to everyone back in the office. Felt really bad for him.

That Neulasta sure does an amazing job with the white blood cells.

I had lots of energy all week, though it appeared to wane by mid afternoon. Took a lot of naps that appeared to help. Still end up in bed by around 9 every night. Strange new life.

Janet and I went out to buy a vacuum cleaner and came home with a 46″ Sony Bravia TV. What to do? It was on sale and hard to resist. Also upgraded our TV to HD to take advantage of the new TV. Nothing lie watching Dr Phil in HD. I jest. Never watch that pompous freak. Just an opinion. Don’t sue me. The picture quality is absolutely amazing. In spite of its size, it appears to take less room than the old CRT TV we have been watching for a few years.  I was surprised, though, that the quality of the stuff on the TV has not improved. Still the same old boring stuff. Life’s small toys.

And, yes, we did buy a vacuum. A Dyson. Hard to know what the right decision is. Miele, Bosch, Dyson, Hoover? One store wanted to sell me a Seba. Made in West Germany. Hospital grade filters. Live for a lifetime. $800. We had trouble enough adjusting to the $600 price tag of everyone else, let alone make the jump to $800.

Finally went to the movies. Our traditional Christmas day outing. Sherlock Holmes. Had a great time. Not the best movie in the world. What a load of fun though. All tied up neatly at the end in preparation for the sequel(s). If I understand this right, Robert Downey Jr is guaranteeing his future by making movies that end up in sequels. Iron Man, and now this. Clever lad.

Went to see the Dentist, who called my oncologist who basically said do not touch that guy. We are delaying the January chemo by a week to allow me to see the Dental Surgeon, with fewer risks. The surgeon was quite nice. Friendly, with one of those smiles that is well practiced, but not genuine. His nurse was very sympathetic to my plight and could not understand why I was quite cheerful. I told her about the amazing support network I am surrounded by, and what a great oncologist I have. The Dental Surgeons attitude changed considerably once he spoke with Dr. Hedley. Interesting how we need validation for some things. Anyways, I have to see the surgeon sometime betweem the 14th and 18th of January.

Dr Hedley’s nurse, Shahnaz called to make sure I am OK. How sweet is that?

Diana and kids came over on Christmas Eve. Diana even brought the meal. What fun. A very pleasant evening indeed.

Still have my head of hair. Thinner. Who can really tell though???

Sitting in Judgment

Why do we insist on sitting in judgment of others.  All the time.

We used to have to fill out these smile sheets when I was teaching a lot. It was a means for everyone to judge the instructor. Not the student. Just the instructor. They were ridiculous things. I researched the topic and discovered that they are totally meaningless. Notice I changed the tense of the sentence to the present from the past. They were useless then and they are useless now. We had to fill one out for the Art Therapy Moderator. Stupid things.

The research I did revealed some interesting bits of information. Amongst them is how quickly we make up our minds about each other. The first five minutes are crucial, and there is little you can do about it. This means that the students who are about to spend the next 8 hours with you have decided whether you are a nice guy or not by the time you have finished saying good morning. Nothing to do with your teaching skills. Stupid smile sheets.

I have read all sorts of things, including those theories of the 30 second elevator pitch. The theory is that you should be able to pitch your story to anyone in the time it tales to ride an elevator. Why in the world would you want to do this? Your story has surely more value than a 30 second pitch, and to a stranger at that. I realise that the idea is to be succinct. To have a clear understanding of what it is you do. Noting wrong with that. This theory just adds to the 30 second attention span that we are all developing. Short snippets of information, a la Tweet, as opposed to delving more deeply into a subject, or a company, or a person.

The actress Brittany Murphy died the other day. Young, beautiful, blond, and a Hollywood star. I had never heard of her. Read about it in the Globe and Mail. The paper allows people to register with them and add comments to all their stories. There always appear to be a number of people who have nothing better to do than entertain us with their inane opinions. None were positive, other than the few who offered some sort of condolences. Most were convinced that she had drug problems, and died of an overdose or further complications from the Hollywood lifestyle. One went so far as question whether the drug was cocaine or not. This at a time when no one was reporting much. The police were mute while they investigated, the family was not saying anything, and nor was the hospital. Turns out she died of a heart attack.

We all say things without knowing all the facts. We talk from a point of authority whether or not we know what we are talking about. We feel compelled to make sure everyone knows our opinion as misguided as it turns out to be. Making comments anonymously online does little to alleviate the situation.

I was reading an article in the Globe and Mail about Health Care. People felt free to judge others and their health related issues. If only people took better care of themselves, there would be fewer sick people in the world. No facts. No knowledge of the circumstances surrounding people’s health issues. I had to write in, asking that people not judge so quickly when they have little knowledge of the facts. In fact, the older I get, the more I realise that we feel free to make comments on subjects that we have little knowledge of.

I listen to the CBC. They have a number of call in shows. I have called in once. Never again. We all talk from a point of ignorance. Regarding eHealth, $1 Billion wasted. Not true. There was a lot of very fruitful work done. We will only know how much was wasted once a full audit is carried out. In the meantime stop talking about it. I read an article that talked about the simplicity of creating a database for eHealth. Ignorant columnist. Databases are difficult to create. Specially one that has to be scalable to meet the needs of about 13 million people. Let us use the system pioneered in Alberta they say. Articles have pointed out the shortcomings of the Alberta system, and how it will not meet the needs of Ontario. Alberta has 3 million users. Pay no heed, keep talking from a position of blissful ignorance.

And so we judge. She is too fat, too skinny, too blond, not blond enough. And so it goes.

Every comment you make about someone is derided by others as being judgmental. Specially if it is negative. Chinese are bad drivers. I am not allowed to say that anymore in front of Janet. It is derogatory. But saying something positive about the Chinese is OK. They are great business people. Janet and I had a long discussion about this. It does not help that we live around the corner from a Chinese community. I asked her why we are considered judgmental when we say something negative, but not something positive. I am still waiting for an answer. I am puzzled by this.

A close friend once remarked about how quickly I come to conclusions about people. She put it down to the extensive traveling and displacement our family has gone through. I did not say much about it. Seemed to make sense. Except that we make up our minds in the first 5 minutes. I was not so unusually speedy after all. I do make up my mind quickly. So does the rest of my family. We come across as harsh and judgmental. Give them time to prove themselves. How much time? What does proving oneself mean? Why do they have to prove themselves to me? Does this mean I have to prove myself to others? Why? Prove what? To what end?

The only person who can judge us is ourselves. Even then, we are poor at it. We often undermine our own capabilities. We waste a lot of time and energy on judging one another and people we do not even know.

I go shopping with Janet a lot. She does the shopping. I take pictures, or engage in a favourite activity. People watching. I am fascinated by people. The way they walk, talk, stand, sit. How women can rarely pass by a mirror without adjusting their hair. The body language is amazing. The insecurities, even in this very public domain, is flabbergasting. We are very uneasy in our own bodies. This appears to be true regardless of culture, I see the same things in other cultures when we go traveling. Every once in a while, you see someone who is very sure of themselves. It is like a breath of fresh air. They tend to stand straight, head held high, walk with confidence, and are oblivious to those around them. No one matters but them.

We are complex individuals.

A hearty congratulations on your wedding

May your wildest dreams be fulfilled

May you flourish emotionally

May you grow intellectually

May the flowers bloom in the garden of your love

May the angels sing sweet music in your heart

May the powers of the universe shower you with love and kindness

Ya Baha’ul’Abha

God Bless.

I found myself being really short tempered for a couple of weeks. It seemed to pass once the Neulasta kicked in. Maybe there was a connection? The effects of life on the brain and emotions is staggering. I am not sure if those are the right expressions, but it seems you sometimes have little control [...]

Our friends came over for dinner last Friday night. We brought in food from Riz, always wonderful and tasty. Unfortunately, Daryl who organised the evening came down with stomach flue and could not come.  We had a great time. I monopolised Judith all night which was wonderful. My back had started hurting in the afternoon. [...]

Art Therapy - Session 7

The final session. 4 people showed up. We had to do 2 paintings. The first: Paint what your holding on to.  The first step was to write down what I felt I am holding on to. Not as easy as I thought it would be. Do you just think of the positive things, the negative [...]

I have been sent a couple of poems of late and thought it appropriate to share them with you. The first is courtesy of Daryl Aitken, the second from Doug Miller. Invictus Out of the night that covers me, Black as the Pit from pole to pole, I thank whatever gods may be For my [...]

I am a useless git. I have little worth anymore. I lie around all day, barely able to do anything. I am always tired, sleeping, doing stupid word searches. A load on society to say nothing of my friends and family. I can barely contribute to conversations, in an intelligent way. I certainly cannot do [...]

© 2010 I Have Cancer Suffusion theme by Sayontan Sinha