Why does it take a crisis to find out who your friends are?What is it about a crisis that brings some people closer to you while alienating others?

We read and talk about people not knowing what to say, or how to behave, but I think there is more to it than that. Not sure what it is, have not read any studies on the subject. Maybe I should. Or not. There appears to be some opportunism or reverse opportunism in all of this.

A bit of – I have no use for this person any more. They have stopped being fun. Turned into a downer. All they talk about it their chronic condition. Not interested in watching sports any more. Not interested in shopping and all the other things that made you fun to be with. Why is the chronic person so quick tempered and angry all the time? Time for new friends, or more to the point, renewed friendships.

People rising to the occasion, visiting, talking, making their presence felt one way or another. Everyone catering to their strengths. Some just dropping by for a visit, companionship. Others making conversation, others lending you their cottages, or places to while away your time. Whether one takes advantage of the occasion, the offers, is hardly germane. One appreciates the sentiment, the offer, the gesture, the sentiment.

People are constantly telling me they might die any time as well. Avoiding the crisis. Death is hardly ever a pleasant conversation, nor is the specter of imminent death, whether speculated as something that is about to happen tomorrow or in ten years, a very pleasant thought to live with. Yet, here we are. Are people attempting to defuse the subject? Is there a benefit to telling the chronic person that there is competition to dying?

We would surely leads our lives differently if we believed truly that we could die at any minute, negating the doomsday scenario that prevails the chronic person. We live our lives the way we should, planning ahead, looking forward to watching in horror as our children grow up. Waiting patiently for the grand children, the travels, the parties, the friends.

Only a crisis provokes serious concerns about imminent death. The concerns soon evaporate as reality set in. We do not know when we will be lining up at the pearly gates. Even my friend who is dying and is seeing the palliative doctors has really no idea when the day will come. We just know that we have to be prepared for it in a way others don’t.

The crisis that is my condition has subsided somewhat. People have returned to their daily lives. This just a footnote to keep track of. So it should be. It is enough that it has disrupted the lives of one family, let alone a need for it to disrupt those of so many more.

I have been very disturbed since the last CT-Scan results. We were progressing in such amazing ways that the sudden stop has been very unsettling. We knew it was coming. Everybody stop reacting to their Chemo cocktail at some point. 17 Chemo sessions is a lot to put the body through and expect stellar results. At some point the body just gives up and stops reacting. I am there.

The repercussions of this are not known. We live day by day not expecting much. This is not a negative feeling. You just have to learn to appreciate all things at all times.

I was lying in bed last night when the visual of walking along a precipice presented itself. I imagine a whole bunch of us walking along this precipice not daring to look down. Some stones crumble off the edge as we take our walks and fall silently into the unseen depths below us. A bit of our life chipping away? Fewer days ahead?

The edge of the precipice is crowded. Some are closer to the edge, others further up the small hill that abuts the precipice. We are all milling about, recognising some faces, talking, making new friends, contemplating, sitting in silence. We lose someone occasionally as the ground beneath them crumbles taking them in the void below. Some people congregate taking solace in the crowd, others stray farther afield treasuring their solitude. Yet others remain close to the entrance hoping against hope for a way out. The nature of the crowd changes continuously.

People move towards the precipice, as life is coming to a close, then back off as they are given a reprieve of sorts, more time. Time for whatever you think deserves it.

In the distance you see a wall behind which there are suitcases and backpacks and purses and containers. Everyone comes here with their baggage, real or imagined. They topple to their fate leaving it all behind. It accumulates gathering dust, rotting into the ether, a reminder of sorts. I will let your imagination sort that one out. There are tags on everything identifying the owner, some still with us, others long gone. The dust of time hangs heavy in the air. No one ventures further in.

Should you dare look down into the precipice, you will see nothing. Deep, cavernous, never ending, the sides shrouded in mist. People toppling over in silence. No screams or shouts of surprise at the fall. If you listen carefully, you might hear a heavy grateful sigh. A soul leaving the body perhaps, a sigh of gratification maybe.

There is a sense if resignation amongst the crowd. No one has given up. There is no sadness. The inevitable fall is staring us in the face. Yet, we mingle, compare notes, talk, laugh and make the best of it. No longer a question of why but rather one of when?

The first did not have an answer, and the second is no better.

All things become normal after a while. Repeat something often enough and you begin to believe it. So it goes with Chemo.

I remember the trepidation of the first to or three sessions. What to expect? What will happen? You hear such stories from the good to the very bad. He went back to work after four sessions, to lost their hair and retired to the basement. I have indicated many times that my reaction to Chemo has been muted to say the least. I now take public transit to get there. I have taken public transit to come home as well. That will probably happen next week when I go for session 16. Janet and Devin are both working.

Public transit is a pretty good way to go. Takes me from almost the hospital front door to almost my front door. Cannot ask for anything more. Truly a non-event. My immediate reaction to Chemo is watering eyes. Not sure what that is all about. The eyes start watering and don’t stop for 24 hours. Next comes fatigue and the bowel system is thrown off balance. The rest is up in the air as it where. Some things show up and others don’t. Can never tell. We just wait things out. My last bout of Neulasta was not bad. No real pain, no more fatigue than usual. Am I building some sort of immunity to that as well?

I have always had a very strong immune system, which is why the cancer came as a bit of a surprise. That system is now holding me up. I am doing well, I am pretty sure, because my immune system is holding things up. They say the immune system gets compromised by cancer. I am sure mine has been compromised as well. Though my compromised system appears to be behaving very well. I am still forbidden from consuming raw meats. I miss that a lot. Sushi and steak tartar are two of my very favorite meals. Neither has passed these precious lips in over nine months. Sigh.

There I am sitting in the chair at the Chemo Daycare. I have been asked many times why I call it that. The answer is simple. Get off the elevator on the second floor and there are directions that basically say, Chemo Daycare, this way. Once at the end of the corridor, there is another sign that says something like Chemo Daycare reception. Not much left to the imagination.

Back to the story. There are two types chairs at the Chemo Daycare. Both allow you to lie down. The newer chair turns almost into a bed. You keep leaning back expecting to keel over at any minute. The chairs are great for sleeping in. The daycare is moving to the fourth floor in August. A whole new experience awaits us with new airplane like seats. I don’t think anyone will want to leave the place. New seats, new environment, new layout, same old drugs.

I keep digressing. I am lying in my chair, drugs coursing through my veins. Cannot sleep. Lying there watching my nurse go about her duties. I had a new nurse, Celeste. She was very official, as they all are when they do not know you. Check the Blue hospital card against your arm band, check your date of birth, check the drug regimen received against what is in the computer. The list goes on and on. My nurse relaxed when other nurses came by who know me and told her I am a trouble maker and she should give me a hard time.

Really, there is a story of sorts here. I am lying in the chair, failing in all my attempts to sleep. Warm blanket is covering me, pillow under my head. Drugs are coursing through my veins. You knew that already. I decide to look at the chart that the nurses follow in administering the drugs. There are six pages of instructions. Well, only a couple of pages of instructions, most of which is gibberish to me. There is a page that identifies the drugs I am supposed to be getting. Absurd amount of detail in there. Good for them to know, gibberish to me, though I think I might make a copy of it and browse the web for misinformation about what it is that is having a party in my body. I finally arrive at the first page.

There it is in all its glory. You are at the Princess Margaret Hospital. Your number is whatever. I am not giving that out, You might be jealous of the treatment I am receiving and decide to try it out for yourself. No such luck for you today. You will have to suffer through it in some semblance of virtual reality. The first page is also where it says that this is Session 15. On the same line as the session number is another entry which says, Intent: Palliative.

Yeah. There is that word. The end game. That is where it is all headed at some point. Palliative. I knew that. I have been told enough times about how complicated this is, and how advanced I am. That is all talk. Intellectual stuff. This is a bit stark. Sterile. Lifeless. You are headed to palliative, not today, or tomorrow. Sometime in the future. Five years? Ten years? More? Less? Hardly seems to matter. You are headed there at some point. Time to clean up the bedroom.

Death is such a bizarre concept. There is no coming back. No one has been able to put the experience into words. Here we are at the death bed of John Truro. Cameras rolling, microphone on, How does it feel Mr. Truro to be gasping your last breath? It feels like, well, let me put to you this way……. Just like in the movies where dying people talk to the very last minute. I watched a friend die once. It was nothing like that. The final half hour was very quiet. His deep breathing filling the room in the palliative ward. The priest came and went after uttering his blessings. The nurse came and stroked his head until the final breath was uttered. There was little left to say. Mixed emotions and feelings.

The person lives on for a few months. People talk about him. Then nothing. An afterthought. The name comes up in certain situations, but really, nothing vital is left. There is nothing wrong with this. Just the way life comes and goes. My father died in Swaziland. I was first on the scene. My sister joined me shortly after. We were left in charge of taking care of his few possessions. A few articles of clothing, and books. So many books. All in Persian or Arabic. We had no idea what they were about. We shipped them all out to some library somewhere. They would know what to do with them. That was in 1999. We closed his bank account. Buried him. Went back two years later to unveil the stone. Done. Finished. All gone. We obviously talk about him once in a while. He was a man with presence who commanded respect. He had in depth knowledge of the Bible, the Koran, and the Baha’i writings. One of the few who managed to reconcile all the messages in each with the others. But his light is extinguished. His name a mere anecdote in the history of life.

I came to the conclusion a few years ago, that we live through a few generations, then disappear. This explains the number of photographs of people that appear at flea markets all over the world. Piles and piles of pictures. Of no one in particular. Someone at some point. Someone to somebody, but now, no one. A smiling face in a pile of other smiling faces.

My friend Kali, who joins me for lunch every couple of weeks, asked me the other day what I though my legacy would be. What a question. Do we think in those terms? My pictures was the reply. I cannot imagine what my family will do will all the stuff I have that deals with photography. The books, cameras, and other equipment. I keep a lot of it for sentimental reasons. Others I should discard. I just had one of my film cameras repaired. The camera is 40 years old. I will use it again. What will they do with it?

Palliative? Not yet. I still have a lot left to do.

I have cancer as a punishment for my evil ways. Why could the punishment not have been the flu? Or something equally benign? I guess it could have been worse is I had sinned more. I watch House every week on television, and there are a number of conditions that are worse than cancer.

I noticed this couple at one of my chemo sessions. He, the patient, was not a happy camper. Nothing unusual, few of us smile on these occasions. I noticed them again at my last Chemo Daycare part. He was still not a happy camper. Barely said anything. I nodded at him, and he nodded back. His wife/partner/sister who was accompanying him struck up a conversation.

This is not the first time I have heard this interpretation of our condition. SHe maintains that he got cancer because he strayed from the path. This is his punishment. He will get better when he returns to the path.

We continued talking, wandering into a discussion of good and evil. The notion of Satan or the Devil doing his work, while God stands by. Janet left the waiting room. These discussions rarely go anywhere. I enjoy the mental exercise. That is what it is. Getting around the inconsistencies is quite an exercise.

The idea that God would stand by while the Devil goes about his evil ways begs the question of what sort of relationship these two have. I am assuming, of course, that there is such a thing as the Devil or Satan. More on that later.  Does God have a contract with Satan? God says, look at him and his evil ways, take him out. I say he is a category 2 evil. Category 2 you say, well that stands for Cancer. Got it.

The sinner repents, and God says, that is good. You are back in my flock. Devil, here is your commission, job well done. I still have cancer, the price to be paid for my sinning ways.

The woman who brought up the argument that Cancer is a punishment belongs to the Pentecostal Church. He has cancer because he strayed from the straight and narrow.  She will not get cancer because she is on the path through the salvation of Jesus Christ. If God will heal, what is he doing here, in chemo daycare? The answer to some comment I made returns this response: Did God tell him he has cancer? Who are going to believe, God or the Doctor? This is the second time I have come across this particular twist.

If there is a God the almighty, why is there a devil? Why cannot God take him out? God the good, Satan the evil. Are the lines really that clear?

The contradictions in the arguments are astounding. Reconciling the concept of good and evil is, in itself, a Herculean task. What is good and where is the separation between good and evil? Who defines what is good, and by contrast what is evil? Darkness is the absence of light. Is evil the absence of good? Which brings us back to who defines what is good?

The lines separating good and evil get murkier as one gets older. The advantage of not knowing with absolute certainty what all the answers are. Fire is both good and evil. The definition of what is good is getting harder.

Is my cancer good or evil. On the face of it, I can say with absolute certainty that is evil. On the other hand, this blog has helped people who either have cancer, or know someone who does. Getting cancer has given me the opportunity to delve into afreas I would not normally venture into.

My relationship with Fetneh has become stronger than ever, as has my relationship with my brother. My wife and I are closer than we have ever been, a renewed relationship, if that were possible. I cannot work, but I can still help people. Religion plays a bigger role in my life. Contemplation of life and events that surround me have gained a new importance and a validity of sorts. Is cancer bad? I can truly say that it is a pain, and for sure not a good thing. The effects of it, though, have been surprising and an opportunity for spiritual growth.

Baha’is are encouraged to fast once a year, between March 2 and March 21. We are enjoined to not eat or drink between sunrise and sunset. We wake up before sunrise and eat enough to see us to sunset. We also say prayers, one of which is the prayer for the fast. the fast ends with the New Years celebration called Naw Ruz, literally translated as New Day. One of the prayers celebrating Naw Ruz has a passage that is particularly interesting to me:

“Shouldst Thou regard him who hath broken the fast as one who hath observed it, such a man would be reckoned among them who from eternity had been keeping the fast. And shouldst Thou decree that he who hath observed the fast hath broken it, that person would be numbered with such as have caused the Robe of Thy Revelation to be stained with dust, and been far removed from the crystal waters of this living Fountain.”

This opens an amazing door for compassion and forgiveness. Qualifying an action by the amount of spirituality or sincerity in observing rules and regulations.Can this be translated to the observance of other rules?

Some things should be considered as evil, though not at the behest of Satan. Murder in all its forms, as in genocide, is reprehensible. The effects of such actions may not be reprehensible. If death is the ultimate goal of life, then surely such actions fulfill the life long destiny of the victims ushering them into the next life.

Is this too far fetched

Fear is so debilitating. Most are such a waste of emotions.

Not having fear would ruin a good horror movie, mind. The static pages section on the right has a list of over 600 fears and their scientific terms. 600! The title of this post is fear of death and I hope the conversation leads me there. People often ask me what process I go through when writing. Simple really. I just write what comes to my head. Very little editing. I correct my typos, as much as I can. The screen is failing my aging eyes. I might re-arrange a couple of things, but in general do not spend any time re-writing any sections. Hence the hope that the conversation will eventually lead me to the title.

I grew up in Ethiopia. We were there from 1953 to 1963. There are maps of the world showing how much artificial light we generate in different parts of the world. Africa is dark.

Map Showing the Amount of Artificial Lights we Generate

Map Showing the Amount of Artificial Lights we Generate

It is dark today, and it was dark in 1953 and 1963. I was very afraid of the dark. Some nights were so dark you would be blind outside. I have always been a restless sleeper. My parents used to put dining room chairs beside my bed as I kept falling out of bed. I would not go to the bathroom at night. They would leave the bathroom window open. I was terrified of the darkness outside. Every once in a while, there would be a feral cat sitting on the window sill. All I could see was the two eyes shining ominously at me. Did I mention how terrified of cats I was as well? Not sure where I peed the first night I saw that combination in the bathroom window.

We raised chicken in Ethiopia. The feral cats would attack them regularly. My brother made a sport of shooting the cats. The locals would also participate. It was fun, I think. I had no objections. The fewer of them the less likely they would be sitting in the bathroom window waiting for me. My job was to encourage the chickens to go into the coop at nights to prevent the cats from eating them. Chicken are the dumbest animals on earth. They had to be chased into the coop every night. You would think they figure things out after a couple of weeks. But no, not these animals. No wonder we eat them. No danger of any brain disease afflicting us, since chicken do not have brains.

Janet and I went to Martha’s Vineyard for our honeymoon. It was loads of fun, highly recommended as a travel destination. We took a drive down to the beach one night. How romantic. It was a cloudy night, not a star in the sky and totally dark. I mean cannot see the nose in front of your face dark. We found our way to the beach and stood there holding hands listening to the steady rhythm of the waves lapping the shores. We stood for about five minutes when the conversation turned to the dangers of being there by yourself, and how someone could easily kill you and you would never be found. Never mind it was too dark to see anything. We talked ourselves into an inane fear and rushed back to the car racing home.You can laugh now. In fact we all laugh now when we talk about it. What an insane thought process to put yourself through.

Fear.

It paralyses you.

It defeats you.

Makes you cringe at the slightest provocation.

Fear of a project at work stops you from performing the task in the allowed time frame.

And the list goes on.

Wikipedia has a listing  for fear. Big surprise there. They also talk about fear of death. There it is, the title subject.

Are we afraid of death because we do not know what happens after? Why would that scare us? We often do not know what is going to happen after some other events in our lives. Why does death scare us so? Life after death, which I believe in, is also fraught with issues. What happens when you get to the pearly gates? Where do you fit in the new world? We are told there is progress and evolution in the next world but no time factor. How does that work? We are told that there is a connection between our current world and the next. That you reconnect with you spouse in the next world. That punishments not meted out in this world for a crime committed will be looked after in the next world.

All sorts of questions arise from this. What form, what shape, what is considered a punishable offense? What constitutes a punishment? We do not believe in heaven and hell, only life after death. Is Hitler standing behind a window watching the fun everybody else is having? Accompanied by Genghis Khan and Hannibal? Or is Genghis Khan not such a bad guy, living in a different age where values were so different from what they are now? Do we really know the difference between good and bad in order to make an intelligent decision regarding any of this?

What if you do not believe in life after death? The world as you know it ends. You are buried or cremated and that is the end of it. The only certainty in life is death. You are born, and you know that you will die. Just a question of when, where and how. Most of these you cannot control. Not believing in life after death is a release of sorts. No payment for your indiscretions, they are buried with you. What are you afraid of exactly?

We moved to Toronto in 1980. I got a job at Radio Shack as a salesman. An insurance agent came into the store and saw me as a target. There is a twist, a salesperson comes into a store to sell to another salesperson. She started the sale picth:

Do you have life insuranace?

No

What happens if you die?

I will be dead

What about your family?

They won’t be dead

Who is going to bury you?

I don’t know who will bury me. I will be dead.

Is it fair to leave that expense to your family?

I don’t know, others will assist. Look around you, any dead bodies lying around? Somehow everyone gets looked after. And anyways, I will be dead.

She walks out.

I do not fear death because I do not know what lies ahead of me. I can only fear things I know about. For instance running over a pedestrian. It could happen, specially the way I drive. That is a relative known factor. But death is so unknown. Not like you can come back and talk about it, or send a postcard. You die, you are gone. Why the fear?

The above mentioned Wikipedia article talks about people of Faith have less fear of death. The further you remove yourself from Faith, the more scared of death you are.

Some of my friends tell me I am lucky or fortunate to have this Faith that gives me comfort. Maybe. I wish I understood this better.

This has been a recurring theme. It is fitting that it should be addressed in its very own post. What honour. Life has changed to the point that the future has little meaning. People are always telling me that we do not know when we are going to die. This should make it easier to [...]

The full import of the situation is slowly settling in. Hard to avoid the issue now that you have a shit-bag connected to your stomach. The word useless asshole has taken on a whole new meaning. A colostomy bag is front and centre on my stomach, a sure sign of a changed way of life. [...]

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