Farokh

Went to see Dr. Kennedy today. She was delighted to be the first to give the results of the CT-Scan as well as CEA blood test numbers. The CT-Scan results are outlined below. As you can see, a huge drop in the size of the tumours.

Janet and I were both a bit overwhelmed by the information and under-reacted, to say the least. Went out for lunch to celebrate. And cried. And hugged. And cried some more.

I have come to the conclusion that it is the crying that expels the cancer cells.

The CEA blood count is also down rather dramatically, from 1266. on November 18, to 392.9 on December 16. All pointing to a move in the right direction.

That is all I can write for now.

All sizes in cm 16-Nov-09 11-Jan-10 %
Liver 21.10 14.80 29.86%
Segment 7 8.20 6.20 24.39%
Segment 8 6.70 4.70 29.85%
Segment 3 2.40 1.40 41.67%
Segment 5/8 3.80 2.50 34.21%
Lung 1.60 1.00 37.50%
Right Lung Base 1 0.80 0.40 50.00%
Right Lung Base 2 0.80 0.60 25.00%

This turned out to be a very hard week. I will have to write about it a bit later when all my thoughts have been worked out. Sorry, but I have to think things out. The emotional affects the physical and vice-versa. The first part of the week was hard emotionally. The rest was hard physically.

I went in for my Neulasta shot on Monday, about which I have already written copiously. Neulasta appears to have a debilitating effect before its benefits kick in. I spent most of the week in bed, often in tears for no apparent reason. Slept through a lot of it. Had a moderate temperature all week, hovering between normal (36.5C) and 37.4C. Nothing major. The chemo instructions are to NOT take anything for a temperature. Since we cannot tell for sure that the temperature is due to Neulasta, I spent the week with the temperature and no relief.

The first time I took this drug, I spent 30 hours suffering from lower back spasms. I waited for them all week. There were small signs of them almost every day, but they passed quickly. As in one spasm then it was over. Things changed on Saturday night. Judy and Arlin brought some pizza over from the Magic Oven, one of the best and most expensive pizza houses in town. I spent most of Saturday in bed trying to regain my strength. I was not too successful. Around 9PM, my ribs around my liver started to hurt much as my lower back the previous month.

I went back to bed, took two Tylenol1s (T1s), rolled over on my left side and assumed the fetus position. This was the only position that provided some relief. I tried them all. I cried and cried. Devin came up to console me, and still I cried. It was very hard. I started to feel a bit better when the drugs finally decided to perform their designated task.  I barely slept the whole night. Woke up on the hour, took T1s every four or five hours. I have been pain free, since about 11AM when I took my last dose. This could be a good sign.

I shoveled the meager amount of snow we have had on Friday morning. More of a swept the snow away than actual shoveling. Cleaned the snow off the car, so Janet would not have to. She went to work, I went back to bed. Could not believe how exhausting shoveling a couple of inches of fluffy snow was. Slept trough to 12:30, and woke up only because I was very hungry. Warmed up some rice, then the phone started ringing. It was very bizarre. It had not rung the entire morning, but started doing so once I was awake.

Sharon Singer came over for a chat and a look see. I was in great shape. We had a wonderful time to be repeated soon, I hope. One of those rambling discussion I tend to have with a few of my friends.

Back to bed by 8PM. What a life.

The coming week has a few activities in it. I am seeing Dr. Kennedy, my surgeon on Monday, followed by Brain Fog on Tuesday, and Q-Gong on Wednesday.

That should keep me out of trouble.

The days are a blur. Christmas was barely noticed, as is the Hew Year. Cannot stay up to celebrate the coming of the new year. I guess I will have to celebrate when I wake up in the morning.

This is a chemo week. My oncologist’s New Year present. Went in for blood work on Tuesday morning in preparation for my date with the Chemo Daycare. I love the nurses in this unit. There appears to be little pressure on them. They are calm, efficient, attentive, and always smiling.  We joke around a bit. One of the nurses is calling me by my first name, which is cool. She is the one who has had breast cancer and gone through the chemo experience. Very reassuring and listens should I decide to rant or anything.

I have been asked by Wellspring to participate in a study with the outfit that runs the Brain Fog sessions. These sessions are meant to increase your cognitive abilities. They need to know if the sessions are working or not. I agreed to participate. What else do I have to do?

I attended the session on Tuesday morning. It was supposed to last between 60 and 90 minutes. But I talk fast, so it ended a bit earlier. Hah! The study was interesting. They made me sign a consent form, I barely skimmed through it. Big mistake. The first question had to do with recalling what was on the consent form. I recalled one item, which turned out to be the most important one. Lucky me. Don’t ask me what it was. Don’t remember it any more.

The rest of the questions were interesting. They read out a list of words, and you had to recall as many as you could. They would reread the list to allow you to add to the recall. Never recalled all of them. To make matters worse, they asked you how many of the words you recalled about 30 minutes later. That is cheating.

Same with a bunch of number. They kept adding one number to the list and you had to repeat the numbers starting from the first one. They showed you a drawing which you had to replicate. Nothing complicated, but reasonably involved. Of course, they asked to draw it again 30 minutes later. Cheaters. I aced that one.

And the questions went on. They read you a snippet of a story from a paper and you had to repeat the story word for word.They asked you how many years of schooling you have had starting from day one. Are you kidding me? I changes countries three times, and schools I don’t know how many times. This might be fine for someone who grew up in one, or maybe two countries, but not for a migrant habitue, as it were.

I had to fill out these forms full of questions. Like, do you miss sign posts when you are driving? I told the police officer I was suffering when I went through the Stop sign, but he did not believe me, honest. Nah, no problem there. It was a long list. The only one that I highlighted was the trouble I have with reading. You keep reading the same page over and over again, until you realise the futility of what you are doing. Having said that, I just finished reading two books by Malcolm Gladwell. What a lovely writer he is.

The moderator decided that I was doing fine.

The session starts on January 12. Will keep you posted.

Wednesday was chemo day. Janet came with me. I decided to sleep through the process and she went shopping.  Easy peasy, as they say.

The rest of the week was spent recovering from the chemo. We went shopping on Saturday because Janet was going a bit stir crazy from being in the house all the time. Went to see It’s Complicated on Sunday, to which all I have to say is Not! Chick flick.

That’s all there is.

We were there in 2006. My wife became very sick and was bed-bound. I asked the concierge to point me to the more derelict parts of the city. Sometimes the best places to take pictures. He suggested somewhere close to the downtown area we had already visited. Nah. Been there, done that. Worse than that, I said. He sighed and suggested a different area.</p>
<p>I looked at the map. It was not there. He smiled and said, no, not on the map. But if you go past the map, you will see this area. Not for tourists.</p>
<p>I took the subway to the end of the line and started walking back.  People left me alone. It was a Sunday, and the streets were deserted. The few that were out were a bit amused at what I was doing.</p>
<p>This picture was taken under an overpass. There was a lot of graffiti on the overpass, and some of the buildings. That will be next week’s picture. Then, this chair overturned with a pair of boots nearby. Could not help but think someone had been vaporised.
We were there in 2006. My wife became very sick and was bed-bound. I asked the concierge to point me to the more derelict parts of the city. Sometimes the best places to take pictures. He suggested somewhere close to the downtown area we had already visited. Nah. Been there, done that. Worse than that, I said. He sighed and suggested a different area.

I looked at the map. It was not there. He smiled and said, no, not on the map. But if you go past the map, you will see this area. Not for tourists.

I took the subway to the end of the line and started walking back. People left me alone. It was a Sunday, and the streets were deserted. The few that were out were a bit amused at what I was doing.

This picture was taken under an overpass. There was a lot of graffiti on the overpass, and some of the buildings. That will be next week’s picture. Then, this chair overturned with a pair of boots nearby. Could not help but think someone had been vaporised.

Place: Barcelona

Story: We were there in 2006. Janet became very sick and was bed-bound. I asked the concierge to point me to the more derelict parts of the city. Sometimes the best places to take pictures. He suggested somewhere close to the downtown area we had already visited. Nah. Been there, done that. Worse than that, I said. He sighed and suggested a different area.

I looked at the map. It was not there. He smiled and said, no, not on the map. But if you go past the map, you will see this area. Not for tourists.

I took the subway to the end of the line and started walking back.  People left me alone. It was a Sunday, and the streets were deserted. The few that were out were a bit amused at what I was doing.

This picture was taken under an overpass. There was a lot of graffiti on the overpass, and some of the buildings. That will be next week’s picture. Then, this chair overturned with a pair of boots nearby. Could not help but think someone had been vaporised.

Here we are a full four months after the operation. Is it time to reflect yet on what has happened?

We (my family) are constantly amazed how we humans adapt to whatever is thrown at us. Whenever you dare think things are really bad, you come across a woman without a nose.  But adapt we do, and reflection is part of that.

I grew up traveling and being displaced a lot. This did not appear to be a major issue until people starting pointing out small things, like culture shock and the down side of displacement. Other effects are less obvious. An incredible desire to protect yourself from everyone. Displacement creates a lot of anxiety. You keep having to prove yourself over and over again. At least, you think you do, and therefore attempt to do so. You become very insecure, whether you show it or not. In some cases, like when you are the only coloured person in an all white boarding school in the UK, other problems arise and existing issues are exacerbated.

I tell people that I was a really dumb boy. Stayed dumb for years. Oblivious to what was going on around me. Almost insensitive. I think, upon reflection, that I was not so much dumb, as removed from what was going on. The protection mechanism coming in full force. You react very slowly or not at all to events. Friends are hard to come by, not because people are not friendly, but because you are in some major ways, shut down. You fail to notice overtures. You behave in strange and unpredictable ways insofar as you are the stranger in the room unaware of some of the cultural differences that, in hindsight, were shining like beacons on a hill. I do not have examples, but I know they were there. One of the results was not being invited to parties, for instance.

Getting cancer has some of its own unsettling effects on your body and mind. To say the least. With one major difference. This time, the effects are somewhat mitigated by the fact that you have had a life, a marriage, new friends, work. The stranger in the room this time, is the cancer. A very unwelcome stranger that seems incapable of taking a hint. Definitely not invited to the party. Why does it keep hanging around?

Your past issues are held at bay for now. They seem so unimportant. You have to deal with the uninvited guest. So many of my friends have remarked on my being a lot more open, more receptive, calmer. This has not been a conscious decision, or something I worked on tirelessly for a few years under the watchful eye of a therapist. It just happened because you no longer have the energy to devote to being guarded, or defensive, or wary, or whatever your personality displayed at the time. You are way too busy wondering about the whys and wherefores of your current dilemma.

I am a lot more short tempered than I have ever been. I know I have mentioned this before. I thought it would be a phase. Not so lucky. I have no patience left. My tone shows it. Janet and I were shopping at Chapters (book store) the other day. This guy was paying for his books, but the stroller he had with him was blocking the way. I have no idea why people do this. He is standing at the cash, while the stroller is blocking the path behind him. I said: Excuse me do you mind moving your stroller. He gave me this look that translates to: what is your problem? I think even Janet was a bit surprised. I realised that my tone had been quite sharp. I was miffed that he had the temerity to block the passage. How minor an issue, and yet so large and prominent.

Next week is the start of two programs at Wellspring, Brain Fog, and Q-Chong. Looking forward to it.

Tomorrow is CT-Scan day. We will have the results hopefully by Monday when we see Dr. Kennedy, my surgeon. This will be the first time we will know for sure whether the chemo is working or not. I have no reason to assume it is not. I am in generally good health, positive, strong and mighty, as it were. The Neulasta helps when it decided to kick in. I do not have a cold, or any other infection. Small signs of the effects of chemo are there for those who are interested. Thinning hair, low platelets that result in nose bleeds. Nothing serious, just something to be aware of. Yet, I am a bit anxious. CT-Scans are pretty innocuous affairs. They cannot use the Porta-Cath and have to insert a needle to feed me the poison. That is the worst part, the needle. The rest of the scan is a quick and smooth event. That damn needle. There is apparently a new Porta-Cath coming to Canada that will allow them to use it for CT-Scans as well. I am hoping they will replace mine. The 90 minute operation is a no-brainer.

Who knew these bastards have such an effect on a person. Today is Neulasta day. You can almost feel the energy draining from your body. Have I been compensating? Trying harder to make a go of things? Or do I really get this weak? It is truly a maddening set of circumstances. My prescription was [...]

Top of a glorious cactus growing in the greenhouse in Toronto

That Neulasta sure does an amazing job with the white blood cells. I had lots of energy all week, though it appeared to wane by mid afternoon. Took a lot of naps that appeared to help. Still end up in bed by around 9 every night. Strange new life. Janet and I went out to [...]

Sitting in Judgment Why do we insist on sitting in judgment of others.  All the time. We used to have to fill out these smile sheets when I was teaching a lot. It was a means for everyone to judge the instructor. Not the student. Just the instructor. They were ridiculous things. I researched the [...]

Discarded monitor spoils the pristine beauty of a controlled river in Toronto

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